Sometimes it feels like a dark path we are on. We move from one medical crisis to another it seems. Each day we watch our daughter’s diagnosis get a little more complex. As her parents, we’d do anything to make life easier for her. In our heavy moments it just doesn’t seem fair. Yet, how can I judge what is fair when I can only see a small part of the picture? This side of heaven I will never know the whole story. He is working all things together for good just as He promised.
It’s easy to become weary on the road we travel as a family with medically complex children. At times it feels like the world is rushing right on past. You wonder how long your child will have to suffer before relief comes again. However, I cannot deny that walking alongside my daughter’s suffering has taken me closer to understanding just how much He chose to suffer for us. I can be certain, without a shadow of a doubt, that not one bit of her suffering goes unnoticed by Him. And there will come a day that there will be no more suffering. He can be trusted on all the days that lie in between.
The darkness doesn’t last for long, because she always looks for the light. As soon as symptoms subside for a moment, she flashes us her signature smile and sheds perspective as we try to find our way. She reminds us that joy can be found in the simplest of things, like the twinkle lights wrapped on her favorite teddy bear. Some days it’s the sound of her daddy saying hello to her at the end of his work day. Others it’s the cool fresh air blowing across her face. So many little things that you and I often take for granted … yet she causes us to slow down and take in the many grace-filled moments that He provides along this journey.
She shows us that nothing, not even the longest list of diagnosis, can darken the love we share. Without a word, she has shown us the very meaning of life and how to love. So we will follow her lead and keep looking for the light that is sure to brighten our path. We will choose to keep trusting the ‘light of the world’ who came all those years ago as a baby is here today – right next to us – just wanting us to draw in close to Him. He will never leave us on what sometimes feels like a dark path alone.
John 8:12 When Jesus spoke again to the people, he said, “I am the light of the world. Whoever follows me will never walk in darkness, but will have the light of life.”
Lord, thank you for the lessons you teach us each day through the lives of our children. We are so grateful for your mercies that come in abundance each morning and help us to walk this road we are on with faith that we don’t yet know the whole story, but we can trust the Author who is writing it.
Shelly Roberts is a dedicated wife and mom to 8 kids from around the globe (3 grown & 5 at home). With God in control, Shelly’s family has experienced twists and turns that have made for an inspiring story. Serving in foster care brought the new dimension of disabilities to her family, transforming their hearts to welcome these children as daughter and son and advocate for vulnerable children. Shelly understands the unique dynamics of a family that has complex-needs kids and desires to encourage and lead other families to the One who is bigger than our circumstances. Whether camping out in a hospital room or at home enjoying time with a grandbaby, she’s learned to find joy in the moment and to trust His grace for each season.